*Warning: this has been in the drafts since July! :) Oh and I can't find the video now*
Carlei turned one on the 29th! We celebrated with my family and then we went up to Salt Lake to celebrate with Justin's family. She was very spoiled. She started to walk on her birthday too! Here is a video of the cake...
Friday, September 28, 2012
Laryngomalacia
When Carlei was born we noticed that she was a noisy breather and got worse with excitement and such. When she was 6 months old we went to a local ENT (ears, nose and throat) Dr. He diagnosied her with laryngomalacia. "Laryngomalacia is a congenital softening of the tissues of the larynx (voice box) above the vocal cords. This is the most common cause of noisy breathing in infancy. The laryngeal structure is malformed and floppy, causing the tissues to fall over the airway opening and partially block it." (http://www.chop.edu/service/airway-disorders/conditions-we-treat/laryngomalacia.html)
(http://www.webmd.com/a-to-z-guides/normal-vocal-cords)
Laryngomalacia. The epiglottis is tightly curled and omega-shaped, with short, tethered aryepiglottic (AE) folds. There is redundant supraglottic mucosa overlying the arytenoid and accessory cartilages. (http://www.sciencedirect.com/science/article/pii/S1043181009000852)
We would take her in every 3 months for a check up and the doctor said that it was a mild-to-moderate case. At 12 months, he said that he is not comfortable saying that Carlei is going to be fine so he referred us down to Primary Childrens Hospital in Sakt Lake City. There we meet with a pediatric ENT. We described her symptoms and he said that it will probably be fine but he wanted to make sure, so Carlei got her 4th scope; down the nose to the throat. Poor girl. The doctor told us that she has a severe case of layngomalacia. He said that he is very surprised that her symptoms are not worse than they are. He kept asking us if she ever stopped breathing at night and of course, like most parents, we told him that she sleeps in seperate room and that we don't stay awake watching her every night. He chuckled. He then reassures us that she can still out grow this condition but it is going to take her years to do this. His biggest concern is that her oxygen levels drop at night so he wants us to do an overnight oximetery test. A local company will bring a small device to our house that has a finger probe on it that will record her oxygen levels at night. If she can keep her levels up at night then he is comfortable saying we will just watch it. However, if they drop at night then we will have some decisions to make on her behalf, surgery being the best option.
Many people have asked me if I am worried or not. All I can tell them is that we have had a miracle in our lives the past 14 months that we did not know about. Since the doctor was so surprised that Carlei is doing as well as she is. He said that she should be doing a lot worse. The miracle is the fact that Carlei is doing so well. For that, we are so grateful. We have definitely since the hand of the Lord in our lives and in Carlei's. We know that the Lord will be with us and will help us make the best decision for our family. We have felt so much comfort through these last few weeks that I am feeling incredibly blessed and grateful for all that I have. One of my friends asked me how I am holding up. All I could tell her is that I am so happy with my life, even with these trials. I know that I am suppose to learn patience and rely on the Lord and that what ever happens is the Lord's will. I am at peace. There is nothing that I can do in either situation except stay strong for my family.
Carlei at 3 months!
We would take her in every 3 months for a check up and the doctor said that it was a mild-to-moderate case. At 12 months, he said that he is not comfortable saying that Carlei is going to be fine so he referred us down to Primary Childrens Hospital in Sakt Lake City. There we meet with a pediatric ENT. We described her symptoms and he said that it will probably be fine but he wanted to make sure, so Carlei got her 4th scope; down the nose to the throat. Poor girl. The doctor told us that she has a severe case of layngomalacia. He said that he is very surprised that her symptoms are not worse than they are. He kept asking us if she ever stopped breathing at night and of course, like most parents, we told him that she sleeps in seperate room and that we don't stay awake watching her every night. He chuckled. He then reassures us that she can still out grow this condition but it is going to take her years to do this. His biggest concern is that her oxygen levels drop at night so he wants us to do an overnight oximetery test. A local company will bring a small device to our house that has a finger probe on it that will record her oxygen levels at night. If she can keep her levels up at night then he is comfortable saying we will just watch it. However, if they drop at night then we will have some decisions to make on her behalf, surgery being the best option.
Many people have asked me if I am worried or not. All I can tell them is that we have had a miracle in our lives the past 14 months that we did not know about. Since the doctor was so surprised that Carlei is doing as well as she is. He said that she should be doing a lot worse. The miracle is the fact that Carlei is doing so well. For that, we are so grateful. We have definitely since the hand of the Lord in our lives and in Carlei's. We know that the Lord will be with us and will help us make the best decision for our family. We have felt so much comfort through these last few weeks that I am feeling incredibly blessed and grateful for all that I have. One of my friends asked me how I am holding up. All I could tell her is that I am so happy with my life, even with these trials. I know that I am suppose to learn patience and rely on the Lord and that what ever happens is the Lord's will. I am at peace. There is nothing that I can do in either situation except stay strong for my family.
Thursday, September 13, 2012
20 Week Update
So here is a current picture of me at 20 weeks...
Well, I went to the doctor today for my 20 week ultrasound. Everything looks good, except the fact that Little Boy is really a little boy. He is in the 28th percentile for growth. The doctor seemed a little concerned because at my 16 week ultrasound he was measuring 5 days smaller. Today though, he was measuring 10-14 days behind in growth. He said that if he stays at the 28th percentile then we are just fine, he will just be quite little. If he continues to decline and fall further behind (below 25%) then he is going to be increasingly worried and more concerned. He said that if he falls below the 10% then I will be diagnosied with IUGR (interuterine growth restiction) and be considered a high risk pregnancy. He may be coming early so we just need to be prepared for any outcome. So we just need Little Brother to stay where he is at. The doctor said that the best we can hope for is that he stays in the 28th percentile. If he gets bigger than great! but he does not think that he will get bigger, only because he is continually getting smaller with time. Little Brothers acitity level is great and heart rate and everything else looked awesome. The organs and systems are working like they should, he is well proportioned, he anatomically wise he looks awesome too, he is just really little. The best to hope for is that he can maintain the 28th percentile. He says there is nothing that I can do (just don't stress), it is not me it is him. So the plan is to check my measurements in 4 weeks and see where they are at. If I am still behide then we will do more ultrasounds and constant measurements from there.
Tuesday, July 10, 2012
Family Pictures June 2012
We had our family pictures taken in June by Taraphotographics! She did an amazing job and we are so glad that we got them taken before she moved! We also found out that we are expecting baby #3! We found out that we are have a BOY!! We are thrilled! I am due on Jan. 28!
Saturday, June 16, 2012
It's been awhile...
Quite a bit has happened since Whitney turned 2. I am such a bad photographer, so no new pics. Well, since then Andrew and Anna have moved so we are here in the Burg without any family. Kevin and Holly got married on April 7th! They are in Missouri right now but will be moving back to Rexburg in September. I am so excited! We signed a lease on a new 3 bedroom apartment that is right around the corner from where we are now, which will be very nice in the coming future. We went down to Salt Lake for Memorial Day to visit Justin's family! We had a blast!! We also took family pictures at the very beginning of June, so those will be posted soon. I started and finished my Medical Assisting internship and I will take the exam to be certified on July 5th in Pokey! Justin started working again as soon as I finished my internship. He is thrilled to be back at work. While I was doing my internship Justin got to be a stay-at-home dad for 7 weeks! The girls LOVED having there dad home. They have adjusted again to mom staying at home. I have decided to graduate in December with my associates degree in Medical Assisting and then I will continue to take 6 credits online every semester until I graduate with my bachelor's degree in Healthcare Administration. Right now I am set to graduate in April 2016. I know that it quite a ways from now but this will allow me to stay home with my girls and still be going to school to get my education. Carlei has 8 teeth now and is just about walking! Whitney can count to 10 now all by herself! I am one proud momma! She is such a great big sister! Carlei and Whitney get along great and they LOVE to be trouble makers together! Oh I also got a bike trailer so the girls and I go for a ride everyday! They love it and so do I!
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